• The thing that happen when the building blocks are shaken away is that all you see, from the top of the primary colored skyscraper, is the ground. The first floor. The ground floor. You see your first love. Your first loves. You/I see yourself/myself, in j.s truck, driving in the rain, at night, on 880, to drive up to tahoe. to meet lynn and larry an denise and tom in that casino. With that horrible buffet. I can’t drink because I’m not of legal age. I am working at Phillips Brooks School, in Menlo Park, off of Sand Hill Road. I am taking classes at Foothill. Jay is still working at NASA Ames. I still own my home, my first home, on Lafayette Street. My mother had been gone 2.5 years. Jay’s girlfriend, Sue, still has her stuff in their garage. Because of me. He’s told me so many times that she was awful. His first and, thus far, only girlfriend. The only other person he’s ever fucked. I was the second. I am special. I am safe. I am always in the passenger seat and I love it. I feel safe when j. drives. He drives me to see my grandmother in half moon bay. I am safe in the car. We drive to the hills, the Los Altos Hills, every Sunday, to have dinner with his family. I’d never had family dinners. I’m so safe. So loved. We get married right there, in that house–outside. We–everyone–can see the bay. I am so happy. So safe. So safe so safe so–

    Safety is an observation.

    From the sky, now, where it is scary and lonely and painful–I see the ground. I see empty space: heavy, humid air. All the blocks: blue, red, green, yellow–take a bite of peach–the blocks are gone and I don’t know how I got here, where I am, in the sky. I like toasted sandwiches. I like them with a specific baguette, because it reminds me of–I don’t know. Those blocks are gone.

  • An Awesome Wave

    An ocean of iron(y) in my brain—
    Coursing, rushing, flooding veins
    Neuropsychologists inside my head
    I think they think my brain is dead
    Are they correct? Can they be right?
    Have my once strong waves
    Given up this fight?
    I did I did I did—
    I did flee from memory—
    I never had wings
    so I fluttered, searching
    in the ether—
    There was nothing
    Nothing I could trust
    Nowhere for me to cling
    Sprinkled on the ground:
    an infinity of waves
    and fire and sound
    Under, beneath—
    I saw loss
    I saw nothing
    No-one I searched—for a way back to:
    my world
    my life
    my son.
    Like time—
    my blood moves slowly
    then shoos me
    But memories are bullets–
    shooting, blasting, missing—
    My brain is empty
    still so heavy
    So much weight
    behind this levee
    Each hour becomes more unclear
    Who is this person in this mirror?
    Girl, woman, old lady?
    I don’t know
    I don’t fucking now
    I think I’m, now—
    The American psycho.
    
    
    
    
    

  • I taste a liquor never brewed

    I’ve been having the memory of when we were delivering Flynn. To this world. I can see the carpark from the hospital room window. I remember the 4runner you had when we met at NASA. Was it blue? Yellow? (I bought a yellow 4runner, that was really a piece of shit—remember?

    I remember your old duplex, a few blocks from Kims, was faded blue. You had a small garage, and that’w where your bmw motercycle was. You had a black helmut. I remember Denise and Tom’s house in…Milpitas? I remember Lynn and Larry’s house. With the really green lawn and the beautiful flowers. It was across the street from the flute lady. I took some lessons from her, remember?

    Remember when we ran into that flute teacher on a flight between Dublin and London? In London we stayed on the second floor of a biggishh B&B. We went downstairs for breakfast. There was one other person in the room. We left the breakfast room, to the left was a hallway to the kitchen. On the right was the large, brown door that led to the street. We left the building and turned left. We walked down the road. It was my first time out of this country so I thought the walk was amazeballs.

    Sometimes, when I write this, I momentarily think I’m talking about our cottage in the Castro. From there we went out the tiny front door, to the patio. The 2-story building behind us had an entrance—do you remember Freddy? Was there a missing finger, or a big band-aid? Did he have a guitar?

    Still in the Castro cottage: exit the big lack iron gate, turn right, and down to Castro Street. The theater is a block or two to the right, across the street. Past that, a few blocks—for a second I think we’re going to see the ice-cream shop we’d hit ON Castro, in Mountain View—the last shop, on the right, and the railroad track was on the other side of the street. I miss Kim’s. Lunch destinations from NASA.

    Sometimes—I’m having a memory of one of our living rooms and then I realize it’s just my old living room, in the house I grew up in, in Cupertino. It was so tiny, that house. I used to practice my flute near the front window. My mom was so often on her knees, in the garden, with soil-covered hands. I can see the loveseat, I can see where our Christmas tree, I can see the little dining room—that we actually used sometimes.

    And in our Mountain View house the front door opened up to the living room, on the left, and the small dining area, on the right, the kitchen straight ahead, the bathroom door to the right, the bedroom door to the left, and straight back was the back door that led to the small garage. Right?

    Today I woke up in Scotland. Now, we’re in a tavern/pub. It’s upstairs. It’s around noon. We parkon the dead-end ally, on the right side of the street, the front of the small car facing the two story building. We walk inside, turn right, up to the second floor. Inside is all wood. Shiny, caramel walls. And bar. The left side of the pub are windows. Random stained glass windows, flowers, a cross, a pretty mosaic. Wet grey air is on the other side of the window. It seems like we are, often, walking through clouds.

    It’s fun to try and order vegetarian food. We sit at a high table, climb onto a shiny chair, and see what’s written on a chalkboard behind the bar. We are meandering in the highlands, with Cawdor Castle being today (or tomorrow’s) destination. You order soup and a beer. I have a cider and a salad. Later I’ll ask you to stop at a market so I can get some cookies.

    Now, a local asks us where we’re from. We’re told that this man’s son is currently in New York, but the father doesn’t seem to know why, exactly. He drops his shoulders and laughs. We laugh too. We’ve observed that Scottish people have big smiles and big laughs, so it never feels gloomy here. Not really. We haven’t yet been invited to the Scottish boy’s birthday party, that happens later. We’ll see a young man lifted up, while sitting in a chair, and he’ll be carried around the large room to pick up the pound notes his friends and family are waving at him.

    I’ve been coping better in unfamiliar places. Jay has, without purpose, made this happen. I never feel unsafe with him. He’s confident, he’s the smartest person I’ve ever known—that never changes. It took me some time to realize I was safe, with him. It gave me a sense of safety that would grow, allow me to take a lot of risks. Taking risks, with Jay, is what forced me to start living.

    I fall back asleep. I wanted to travel more. I wanted to go back to that super scary Scottish road that wound and wound and wound. . . But. I woke up in Hawaii. That was okay. I love waking up there. Especially Kauai. It wasn’t our honeymoon. It was when we stayed closer to the North Shore. We drove our red rental car to a spot on the road where there was a sign with a red arrow. We parked next to the arrow and hiked, in the mud, down to a beach. We walked through all the trees and mud, and then to the sand. We set up on the beach. We saw fish. We swam in the ocean. Every time I got into the water in Kauai I was in awe of the warmth of the sea. Every time. I’d no idea that the ocean could be so warm. It wasn’t in Half Moon Bay. Or Trinidad. Or Canon Beach. Those were the only oceans I’d been in, until I met Jay. “Be careful. Watch out for jellyfish.”

    I woke up again, today. In my art gallery. I loved my gallery. Jay came by to set something up on my computer. I’d been looking at the DWR catalog. I wanted to get Jay something cool. I wanted to get him something to sit in, something that was beautiful, and wouldn’t be uncomfortable and not hurt to his back. I was researching the Eames Lounge Chair. And Ottoman. I knew he’d love it, but wouldn’t ever buy it for himself.
    I was sipping a cranberry martini that Jay had made—when I started waking up. In this room. In Dallas.

    I’ve slammed myself into the hospital bed—Jay is holding my hand. I am pushing Flynn out of my body. And I’m doing it with no pain relief. Jay keeps telling me I can do it. You can do it. So I do. That was January 7, 2005. I never wanted to believe all of the things I knew were true, about me, for other people. I’m a piece of shit. And I’m insane. It says so right on my medical records. So far today, many times, I’ve wished I could rewrite my story. I don’t think it’s fair that I inherited a disease that didn’t care to reveal itself until I’d already thrown away everything, including myself. And, now, I see a life, my life, that hasn’t stopped living just because I’m no longer in it. Every day I wake up all over the world. I think about how to stop the incessant waking up. So far, none of my attempts have worked. The other day, I woke up in Ireland. We’d just hit a cow. And I went to sleep in Dallas. By myself. Knowing that the biggest memory loss I’m living with is the fact that I’m hardly a memory, for anyone, anymore. I hope that, soon, I wake up in that little white villa, in Andalusia. We drive to the convent, with that 5′ wide, windy road, and we ate those delicious chocolate treats the nuns cooked. Jay purchased a flower from a nun. He gave me the flower. I hope I wake up again here, soon. Spain. Warm. Health. Sangria.

    I want to wake up in my forest–my forest in Humboldt. I want to be out of my literal box with a bathroom. I want to be digging tunnels in the fallen branches, branches that were once giant canopies of ferny shade. I want to be drunk on the liquor never brewed.

    I taste a liquor never brewed (214)
    Emily Dickinson
    1830 –1886
    
    I taste a liquor never brewed – 
    From Tankards scooped in Pearl – 
    Not all the Frankfort Berries
    Yield such an Alcohol!
    
    Inebriate of air – am I – 
    And Debauchee of Dew – 
    Reeling – thro' endless summer days – 
    From inns of molten Blue – 
    
    When "Landlords" turn the drunken Bee
    Out of the Foxglove's door – 
    When Butterflies – renounce their "drams" – 
    I shall but drink the more!
    
    Till Seraphs swing their snowy Hats – 
    And Saints – to windows run – 
    To see the little Tippler
    Leaning against the – Sun!
  • Brass Monkey

    A person wearing a large red sun hat and sunglasses smiles while holding a striped towel, reminiscent of a vibrant Brass Monkey. They have colorful tattoos on their arms and are enjoying the great outdoors on a sunny day.

  • Italy, 1964

    Dear Mother,

    This should have your special consideration. The lighter it is the better, but it must be strong. If you’re going by air, remember that sixty six pounds. If you’re going by boat, it is well to remember weight also. It is always better to be able to carry baggage, there may be no porter. You can ship extra baggage, of course, and it should be sent to the plane or ship at least twenty four-hours before your departure. Obtain labels for your baggage from ship or plane. For the boat, mark it “Wanted” or Hold”. Do not lose your claim checks and be sure that your baggage is with you on plane or ship. It is recommended that all baggage be insured.

    Love, Kathy

  • People with brain atrophy, also called cerebral atrophy, lose brain cells (neurons), which causes a lost of connections between brain cells. Brain volume decreases. This loss of brain volume can lead to problems with thinking, memory, functioning, and — what was I saying? The greater the loss, the more brain impairment. I’m not sure how much volume I lost but I miss it a lot. A real lot.

    Anesthetics activate memory-loss receptors in the brain, ensuring that folks don’t remember what happens during surgery. The activity of memory loss receptors remains high long after the drugs have left the patient’s system, sometimes for days, sometimes longer. We all be unique. There are no documented records at Saint Mary’s that state the cause of my brain damage. If a cause was recorded Saint Mary’s could easily be liable for what happened. So, there isn’t anything on my records that explain the possible cause of my atrophy. (After my surgery there was a rumor that my mental encephalopathy was the result of drinking alcohol before my surgery. When I started getting sick from hemochromatosis I drank enough vodka to fill a tanker full of Russian sailors. Twice. Squared. So, there’s that. That’s another pretty story — but what isn’t?) Each of the personal injury attorneys with whom I have spoke said that Saint Mary’s hospital in Reno is responsible for my encephalopathy. In short, the anesthesiologist fucked up and I have reason to sue Saint Mary’s. And then the lawyers ask me what I’m worth. I say: “You mean…like…financially?” 

    A few years ago I was hospitalized for hepatic encephalopathy, which is a brain disorder that happens when the liver is fucked. I had very high levels of ammonia in my body, which is what can happen when a liver begins to get very damaged. When this happened I had stopped drinking, so the cause was from iron buildup in my liver. Thanks, chromosome 6, ya fuckin’ genetic defect! The hepatic encephalopathy was so scary I remember a lot of it. Like being chained to a hospital bed so I could get drained. Anyhoo. I’m mental. Je suis officiellement fou. And scared. I’m always going on about being a genetic defect. Now it’s better than that — I’m also mentally disabled. So. That’s me. Yup.

    Next up: hepatic encephalopathy!

    A black and white photo of a person with glasses. Their hair is styled messily on top of their head. They have tattoos of roses on their shoulders and are smiling slightly, with sunlight illuminating part of their face.
  • Genetic Defect

    A woman with long, wavy brown hair and glasses smiles slightly. She wears a dark top, revealing a tattoo on her arm. The background features floral patterns with light streaming in, subtly symbolizing life's complexity akin to genetic mutations.
  • I’m Fuckin’ Crazy!


    May 6, 2022
     

    During one of my recentish stays at Baylor Hospital a social worker came to my room. This isn’t unusual. What was unusual was that she came to me to tell me that I qualify for mental disability. The reason the social worker came to tell me that I qualify for disability is because disability can help me access basic health care. It can also help me pay for medical care to deal with my increasingly problematic pancreas. And she already set up an appointment for me at the psychiatry clinic at Parkland. I qualify for mental disability because I have documented medical records that show I have severe atrophy. People with brain atrophy, also called cerebral atrophy, lose brain cells (neurons), which causes connections between their brain cells. Brain volume decreases. This loss of brain volume can lead to problems with thinking, memory, functioning, and — what was I saying? The greater the loss, the more brain impairment. I’m not sure how much volume I lost but I sure do miss it a lot. A real, whole fucking lot. My brain is now disabled.

  • Lost Notes

    Like a lot of people, I wake up every morning. I’m sure this is true because I’m alive. Again. I’m not yet dead. I’m in a living room, on a sofa. Staring at my hands, hands that still move and do things like hold a fork and bring food to my mouth. Spaghetti is delicious.

    My mind is a storm. I can’t stop the hurricanes. Happy, sad, embarrassed, confused, disappointed, scared, disparate. I never remember why I experience these emotions. Sometimes I scream them. Sometimes I dream them.

    My phone tells me that it’s Saturday. I’m awaking on a sofa. Awaking from what, I do not know. I close my eyes and process  what I’ve just seen. Much light. Too much light. Too many windows. Empty glasses scattered on the top of a wide, pale wooden coffee table. I inhale the hot, sizzling scent of bacon. That’s when I know where I am. 

    Where do I live? Not here, on someone’s sofa in a stupidly bright room surrounded by windows. 

    Home. I have two roommates, both of whom I like. One of whom is my son. Every morning I wake up and think of him and he’s going off to kindergarten. He’s eleven. And I am thirty-six, about. It is 2019.

    Where I wake up, this house—not familiar or comfortable. Nothing is. Every morning I wake up, filled with confusion. It’s a storm, my brain is a hurricane, throwing thrash at my skull. The trash are my memories. Some of them belong in the trash, and some are there by mistake.

    Moving hurts. Hips and calves and spine—my bones screech.The muscles don’t remember the pain from yesterday.  Like my brain, my body parts remember very little. 

    I live with Louise, my best friend, and I have done so for over a year. I know it’s been this frame of time because she has told me this and I have written it down. I don’t remember where I wrote it down. Lost notes.

    I do feel at home in my home. I think everything becomes distant when I’m away from it. I think a lot. It occurs to me that I haven’t left my house in days. People tell me to leave my house, and I want to. People tell me to do a lot of things, and the telling me makes them feel good. I want to. 

    I remember that I got my clit pierced, and I remember spreading my legs on a sterile bed so he could stick the needle through my clit. The piercing hurt more than childbirth. A few weeks later that barbell fell out of my clit, and into the playa’s dusty ground.

    A sidewalk. I have a destination. Lately most of my destinations are a handle of vodka. I’m glad that I remembered to wear shoes because the cement is hot. I know it is because earlier I watched the news and the person on Jake’s television told me it was going to be over 95 today. That person was a woman, and she smiled in a way that brought up the entire left side of her mouth in a straight line. I only watched her because I wanted to see if her mouth would touch her nose. She had a small waist. I imagined her driving a Saturn, with two doors. Just two doors for Ms. Sunshine. 

    I walk. My legs are drumsticks I keep dropping onto the concrete. I have no beat. I Clink click clicking clap. The cement, the concrete, the sound of gravel under my drumsticks, is a grimy rhythm. Like my memories, rolling in dirt and being shot by rocks. By words.

    Words are crevices in mountains, and must be waded and climbed through. My drumstick legs are walking in the crumbling dirty crevices of other peoples’ stares. My heart hates thinking, figuring, remembering. I gave my life away and now he has my son and I have no ability to hear that voice of the person—that person who will always sound like my son. It’s another sound I made and I wish I could hear it every day. 

    But. I don’t have a phone and I live somewhere far away, and my drumstick legs can’t make a beat as we clank up the rocky mountains. I can’t walk home. I can’t walk into the ether–even it’s my ether. This I know.